NATIONAL REFERRAL OF SUSPECTED CASES OF CJD

Local clinicians are asked to report all new cases and suspected cases of CJD and other prion diseases to the NCJDRSU in Edinburgh and the National Prion Clinic (NPC) in London, with a copy to the local health protection team. A reporting form and associated information for patients and clinicians are provided below.

• National CJD Reporting Form (updated April 2012)
• Patient Information Leaflet (updated April 2012)
• Letter from the Chief Medical Officer, June 2004

This system does not preclude a clinician informally discussing a suspect or doubtful case with the NCJDRSU or the NPC. The NCJDRSU are very happy to provide clinical and other advice concerning potential cases of CJD. The NCJDRSU provides a national cerebro-spinal fluid (CSF)14-3-3 service and will arrange collection of CSF samples and prompt results.

Further information on making a referral to the NCJDRSU can be found here