As of 31st December 2019, after nearly 23 years of surveillance, 4633 patients with suspected PIND had been reported. There have been six cases of vCJD: four definite and two probable. Three were reported in 1999, one in 2000 and two in mid-2001. The youngest UK case of vCJD identified to date was aged 12 at onset. A total of 2032 cases had a confirmed underlying cause other than vCJD, being categorised into over 220 known neurodegenerative diseases.

(External collaborators on this project: Dr C Verity, Mrs E Baker, Ms AM Winstone, Ms P Maunder)