NATIONAL REFERRAL OF SUSPECTED CASES OF CJD
Local clinicians are asked to report all new cases and suspected cases of CJD and other prion diseases to the NCJDRSU in Edinburgh and the National Prion Clinic (NPC) in London, with a copy to the local health protection team. A reporting form and associated information for patients and clinicians are provided below.
- National CJD Reporting Form (updated April 2012)
- Patient Information Leaflet (updated April 2012)
- Letter from the Chief Medical Officer, June 2004
This system does not preclude a clinician informally discussing a suspect or doubtful case with the NCJDRSU or the NPC. The NCJDRSU are very happy to provide clinical and other advice concerning potential cases of CJD. The NCJDRSU provides a national cerebro-spinal fluid (CSF)14-3-3 service and will arrange collection of CSF samples and prompt results.
REPORTING NEW CJD CASES TO PUBLIC HEALTH TEAMS
To help prevent any possible spread of CJD between people, local clinicians should also inform their local health protection/public health team (the Consultant in Public Health Medicine/Communicable Disease Control or equivalent) about all new suspect cases of all types of CJD. This is vital as a local response may be required with respect to potential secondary transmission, infection control, and any issues that may arise over time concerning the protection of the wider community. A reporting form for clinicians is provided below.
The health protection team will then help investigate and manage any public risk. Guidance on the public health actions to be taken upon being informed of a new case of CJD or person at increased risk of CJD, is available at the link below. For advice relating to implementation of the guidance please contact the CJD teams at Public Health England (Dr Katy Sinka, Consultant Scientist, tel: 0208 327 6090; e-mail: firstname.lastname@example.org) or Health Protection Scotland (Dr Hester Ward, Consultant in Public Health Medicine, tel: 0131 275 6832; e-mail: email@example.com).